We Miss You Every Day Severin. We Love You Severin. HLHS There is Hope!

Severin Grant Brenny

Life Is Not Measured By the Number of Breaths We Take,
But By the Moments That Take Our Breath Away.
You will forever take our breaths away...

In Honor of our son Severin, we bring CHD and HLHS awareness
and Hope through the Resources and Love on this website. 

  • HLHS
    Hypoplastic Left Heart Syndrome 
  • Heart
    Links
  • Severin's Journey
    Our Story
  • Severin's Carepage
    Archive
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HLHS

HLHS...There is Hope!

Most children born with Congenital Heart Defects are now expected to survive into adulthood and beyond. We have set up this website in our son Severin’s memory to help bring awareness, and provide educational resources about HLHS and Congenital Heart Defects (CHD’s). Here we are hoping to let parents know about the wonderful resources and options in medical treatments that can help children diagnosed HLHS.

Congenital heart disease is one or more defects in the structure of the heart. For reasons not fully understood, about eight out of 1,000 babies will be born with a congenital heart defect. A heart defect once meant a shortened lifespan, but medical advances now offer the hope of a brighter future. 

HEARTPEDIA APP

An interactive, 3D app for iPhones, iPads and Android Devices. The app shows anatomically accurate images of Congenital Heart Defects and repairs of those defects.

Hypoplastic Left Heart Syndrome (HLHS)

We are updating links and info on this site so some pages will link out to our original informational pages.
Sano Shunt Procedure>

Norwood Operation>
hemiFontan Operation>
BiDirectional Glenn Operation
Fontan Operation> 
Echocardiogram>

HLHS

HLHS MEDICAL PROCEDURES

We are updating links and info on this site so some pages will link out to our original pages.

Sano Modification Procedure

FULL DETAILS HERE

SUMMARY
The Sano Modification of the Norwood involves the placement of a conduit (light blue tube below) between the pulmonary artery and the right ventricle instead of the Modified Blalock-Taussig Shunt.  
MORE >>

Norwood Operation

FULL DETAILS HERE

SUMMARY
The Norwood procedure is a series of three open-heart surgeries that gradually improve certain life-threatening forms of congenital heart disease.  
MORE >>

hemiFontan Operation

FULL DETAILS HERE

SUMMARY
The hemi-Fontan procedure is the second of three operations for children with hypoplastic left heart syndrome. It is done when the child is between four and six months of age.
MORE >>

BiDirectional Glenn Operation

FULL DETAILS HERE

SUMMARY
The bidirectional Glenn procedure is the surgery used to prepare the heart for a Fontan procedure. It is a surgery in which a detour (shunt) is created from the aorta to the pulmonary artery.   
MORE >>

Fontan Operation

FULL DETAILS HERE

SUMMARY
The Fontan is an open-heart surgery in which a passageway is created for oxygen-poor blood to bypass the right ventricle and travel directly to the lungs for fresh oxygen. It is used to treat a variety of different congenital heart defects. 
MORE >>

Echocardiogram

FULL DETAILS HERE

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 Such a young boy, such a difficult journey, and so many precious lives touched. 

Our story from our hearts to yours...The Brenny Family

IN GRATITUDE

A special thanks to IPHouse for the generous donation of this charitable webspace since it's inception. Thanks to their help, we were able to put up our website in honor of our Angel Severin and to be able to continue to bring awareness to childhood heart defects.
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