Life Is Not Measured By the Number of Breaths We Take,
But By the Moments That Take Our Breath Away.
You will forever take our breaths away...
In Honor of our son Severin, we bring CHD and HLHS awareness
and Hope through the Resources and Love on this website.
HLHS...There is Hope!
Most children born with Congenital Heart Defects are now expected to survive into adulthood and beyond. We have set up this website in our son Severin’s memory to help bring awareness, and provide educational resources about HLHS and Congenital Heart Defects (CHD’s). Here we are hoping to let parents know about the wonderful resources and options in medical treatments that can help children diagnosed HLHS.
Congenital heart disease is one or more defects in the structure of the heart. For reasons not fully understood, about eight out of 1,000 babies will be born with a congenital heart defect. A heart defect once meant a shortened lifespan, but medical advances now offer the hope of a brighter future.
An interactive, 3D app for iPhones, iPads and Android Devices. The app shows anatomically accurate images of Congenital Heart Defects and repairs of those defects.
Our story from our hearts to yours...The Brenny Family
Our beautiful and amazing son, Severin Grant Brenny was born a fraternal twin on September 23, 2002 with Hypoplastic Left Heart Syndrome (HLHS) -- a heart defect in which the left side of the heart doesn’t develop as it should. As a result of a post-operative infection, our Angel Severin passed into God's arms in Heaven on July 17, 2004. We continue to honor him and his brave legacy letting parents know there is hope! We thank the thousands of visitors and medical personal that continue to come to his site.
Severin Grant Brenny was born September 23, 2002 at the U of Michigan, with Hypoplastic Left Heart Syndrome (HLHS). Affecting about 1000 babies born in the US each year, in HLHS children for an unknown reason the left side of the heart does not develop. The HLHS survival rate back in 2002 was 3 - 5 years and 60%. With a tough road ahead, Severin courageously began his journey. At just 9 days old he underwent the first of three surgical procedures so his heart could continue to sustain his precious life.
After more than one month in the hospital, Severin was finally able to come home. With medicine every three hours and getting his nutrition through a feeding tube, life was challenging, but Severin started to grow up and become an irreplaceable part of the Brenny Family.
Just when life was becoming routine, Severin went back to the U of MI hospital, for a second major surgery to help his heart continue to grow with him. The Brenny family relocated to Michigan for a 10-day hospital stay. After returning back to Minnesota, life for this little boy was filled with doctor’s appointments, therapy sessions, and taking medications in addition to the play time.
Then in May of 2004 Severin and his family traveled back to Michigan for the third and final phase of the surgical series. After 50+ days in ICU fighting infections and numerous ups and downs, at the age of 22 months Severin went to Heaven on July 17, 2004. Such a young boy, such a difficult journey, and so many lives touched.
Severin leaves behind his loving parentsAmy Brenny, Chad Brenny, older sister Lauren, twin brother Carson and his younger brother Evan. Our hearts continue to beat through all the heart families we are blessed and honored to know.
A special thanks to IPHouse for the generous donation of this charitable webspace since it's inception. Thanks to their help, we were able to put up our website in honor of our Angel Severin and to be able to continue to bring awareness to childhood heart defects.
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