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This list is an attempt to gather in one place as many of the recognized resources as we can.
This list was not created by a doctor, and is for informational purposes only.
If you would like us to include your site, please contact us.

Web Booklets on Congenital Heart Defects. These online publications describe many defects and the procedures used to repair them. It’s organized so that you can print out the sections that relate to you or your child’s defect and concerns.

Children's Heart Institute:
Understanding How the Heart Works

Archived Site:
The Children's Heart Institute's online resource to educate parents, family members and friends of children with cardiac disorders.

HLHS Congenital Heart Defect:
Hypoplastic Left Heart Syndrome
Children's Heart Instittue

Heart Institue Encyclopedia
The encyclopedia includes topics such as:
– Cardiac Anomalies / Congenital Heart Defects
– Heart Diseases
– Signs and Symptoms
– Diagnostic Methods
– Treatment Options
– Heart-Related Terms Glossary

February 14th, A DAY FOR HEARTS, a concerted annual global effort is being made to heighten awareness of this deadly group of chidren's heart diseases.

Little Hearts, Inc. is a national organization providing support, education, resources, networking, and hope to families affected by congenital heart defects.

Share your story with others.
Get answers to your questions from healthcare professionals.
Speak to others on your own forum. 

Heart and Coeur is an organization that provides information, support services, assistance to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them.

For many parents, hearing the heartbeat of their unborn child becomes their first, loving bond to that child. It's no wonder, then, that discovering that their child has a heart defect, whether diagnosed in the womb, shortly after birth or during childhood, can be devastating. Mended Little Hearts, a support program for parents of children with heart defects and heart disease, is dedicated to inspiring hope in those who care for the littlest heart patients of all. Mended Little Hearts offers resources and a caring support network as families find answers and move forward to find healing and hope.  

It's My Heart is a resource book for patients and families affected by congenital heart defects. In plain, understandable language It's My Heart provides descriptions of the types of congenital heart defects and acquired pediatric heart conditions your child may face. Along with explanations of the various tests, surgical procedures, and treatments for CHD's, this book also contains helpful diagrams, a glossary of medical terms, and much, much more. It's My Heart was developed over a number of years by a dedicated group of doctors, nurses and parents in a collaborative effort spearheaded by The Children's Heart Foundation.

The Angel with the Golden Glow is based on the true, heartfelt story about a special little boy & his family. Lessons of life & beyond are portrayed beautifully in this magical children's tale. Join the Angel with the Golden Glow on his journey of love, joy & courage. Discover with him the power we all have to warm the hearts of those we touch...

The Congenital Heart Center at U of MI C.S. Motts Children’s Hospital offers state of the art diagnostic and treatment facilities. As an international referral center for children with complex congenital heart problems, approximately 850 heart operations are performed here each year.

Heart Centers Across the US

(Under Construction to Add More Link Outs Soon)

Atlanta, GA - Children's Health Care of Atlanta

Augusta, GA - Medical College Georgia 

Austin, TX - Dell Children's Medical Center

Boston, MD - Children's Hospital Boston

Cincinnati, OH - Cincinnati Children's Hospital 

Columbus, OH - Nationwide Children's Hospital

Dallas, TX - Children's Medical Center Dallas

Detroit, MI - Children's Hospital of Michigan

Gainesville, FL - Shands Children's Hospital - UF

Houston, TX - Children's Memorial Hermann Hospital

Iowa City, IA - University of Iowa Children's Hospital

Kansas City, MO - Chilren's Mercy Hospital and Clinics

Los Angeles, CA - Children's Hospital LA

Milwaukee, WI - Children's Hospital of Wisconsin

Minneapolis, MN - Amplatz Children's Hospital

Nashville, TN - Children's Hospital at Vanderbilt

New Orleans, LA - Children's Hospital New Orleans

New York, NY - Morgan Stanley Children's Hospital of NY Presbyterian

Palo Alto, CA - Lucile Packard Children's Hospital - Stanford

Philadelphia, PA - Children's Hospital of Philadelphia

Pittsburgh, PA - Children's Hospital of Pittsburgh UPMC

Rochester, NY - Golisano Children's Hospital

San Francisco, CA - California Pacific Medical Center Sutter Health

Seattle, WA - Children's Hospital and Regional Medical Center

St. Louis, MO - St. Louis Children's Hospital

Washington, DC - Children's National Medical Center DC

Wauwatos, WI - American Family's Children's Hospital of Wisconsin