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The Brenny Benefit Today...
 Wendy Grunwald  September 18, 2004 at 11:39 PM CDT
Had a great time at the benefit today! It was so wonderful!! I put some pictures from today for you guys to see at www.severinbrenny.com

Thinking of you,Amy
 Jennifer Dillard  September 12, 2004 at 08:10 PM CDT
My thoughts wander to you and your family so often. Missing Severin and missing our chats. I hope that with time you can get more rest at night and "turn" your mind off. I just can't imagine what it is like for you right now.

You're an amazing person and Mom. My life is so much better for having you in it. Take care of yourself!
Thoughts for You
 Celeste Gebauer September 08, 2004 at 03:15 PM CDT
Our Family is praying for you during this hard time, for strength for you to get through. It will be good to be with others from similiar circumstances in MI and honor these little ones. I'm grateful you have such good friends and aquaintances to help you through.
Celeste-Parents for Heart MN
Thinking of you
 Deb Novak September 06, 2004 at 06:32 PM CDT
We hope your weekend went well in Ann Arbor at the walk and tree planting. I'm sure you saw many wonderful and familiar faces. We are very sorry to read that your camera was not returned to you. Maybe it will turn up on another day. Try to get some rest. We love you and think about you each and every day.
Deb, Matt and Charlie Novak
Heart Family
 Jennifer Forrest  September 05, 2004 at 11:51 PM CDT
Prayers continue for your family.

Miss you,
Jen F


may God heal the hurt
 Misty Hance September 05, 2004 at 12:21 PM CDT
Amy, my heart continues to ache for you, and there is not a day goes by that I do not think of you, and your family! It was so sweet (and just like you) to think of the birthdays of Meric and the others you have met through Severin's life. And I know that Carson's birthday will be so hard on you this year (and for years to come). But I know that Carson and Lauren need their mama so much too! I'm sure their daily events are what keep you going!
I visited the website, and love the wonderful tribute that has been set up for Severin. I hope your trip to Ann Arbor will be a good step in healing for you. I also think it is great that they are holding the events to help support you and your family in your town!
Before I go, let me say that I miss you in our chats, and hope you will be able to join us again soon! You are in my nightly prayers, and mom asks about you frequently too! Hang in there, your faith will see you through, but I know it isn't easy! Love, Misty
Still thinking of you all
 Rena Walker September 02, 2004 at 05:20 PM CDT
We still think about him too and the rest of your family. I can't really give you words to help ease the pain but still know you are in my prayers. I was hoping for better news about the memory stick from your camera but Carson will remind you of Severin each day and we hope each day gets a little easier for you.

Will caring thoughts,
Rena Walker
Ann Arbor Ronald McDonald House
I know this is way late, but I hope it is not too late...
 Damon Gerhardt  September 02, 2004 at 02:16 AM CDT
Dear Brenny's,

(Written July 19, 2004…)

Yesterday, as I got out of my car in front of our home, I thought I heard my boy crying as if he had fallen and really hurt himself. Due to my distance from our door, I dismissed it as another child. However, as I opened the door, sure enough, my boy was in the back room, red faced and drenched with tears. My wife was holding him at the computer. She looked at me and she also was in tears. Fear struck me—"Oh no," I thought, "either Jarom is severely injured, or Severin just passed away."

As I too struggle for words to extend our tiny arms of comfort to you in this time of mortal parting with your sweet boy, I feel as if I were like Jarom as he sat in his mommy’s lap when her emotions overcame her. As she sobbed after learning of Severin’s passing, Jarom shared her grief and cried without an understanding of it. I feel like we too feel at a loss of understanding, yet feel a fraction of your grief and yearn to comfort you somehow without really knowing how.

Also, I hope that if you had the chance to go back in time and change your decision to go through with the Fontan with the same risks, that you would again choose to go through with the Fontan. Jarom goes in for his Fontan August 17th, and we go in knowing even more now the risks. We all know that this surgery stuff is hard on our babies, and it is hard to consign them to it. But, it is a comfort to hope that our babies will one day see these struggles and sacrifices as they are—a testament of our undivided love for them.

As much as you and your family have been through with such courage, faith, and devotion, Severin must be well adorned with your love in heaven. To have had his beloved family lovingly by his side throughout his life is exactly what I believe we all want most out of life.

(Continuing September 1, 2004…)

I could not bear to sing “Rock a Bye Baby” to Jarom until we changed the words a little. I would like to share them with you:

Rock a bye baby
On the tree top.
When the wind blows,
The cradle will rock.
When the bough breaks
The cradle will fall,
And Angels will catch you,
Cradle and all.

Realizing how fragile our lives are, and how especially fragile our heart babies are, I take comfort in knowing that Angels stand ready to catch them if their boughs ever do break. Yet, as I look through your family pictures online, I cannot help but get choked up about knowing you had to part with your sweet Severin.

We pray that your family may grow stronger through this trial. We pray that your sadness may be replaced with a loving comfort. We pray that any emptiness may be filled with the hope of being reunited as a family again one day.

What a beautiful family you have.

With Love Always,
Damon Christine Jarom


I was just thinking about the “what ifs”, and realized that if a mother had not asked her own “what ifs”, we would not have known about Dr. Bove and Michigan. Carolyn Quigley’s daughter, Hope, had HLHS and passed away at 1 ½ years old after undergoing the surgeries at the University of Utah. I believe Carolyn’s “what ifs” led her to learn of the better care for these children at the U of M. Soon after, she heard of Jarom’s pre-birth diagnosis and started us on the road to the U of M, which gave us an opportunity her family never really had.

In fact, I believe that all of the wonders of modern medicine have been brought about by “what ifs”. I know that many “what ifs” of other HLHS families have served and continue to serve as cautions to us with Jarom.

So I guess what I am saying is that maybe your “what ifs” can become a saving suggestion to someone out there. I hope this does not come across as insensitive or ignorant in any way, but I am hoping that this may serve to help you rest a little better at night.

Still thinking of you all
 Leslei Lovas  September 01, 2004 at 08:52 PM CDT
Troy and I just cant walk by your home without thinking about all of you. Just want to let you know, we are here.
I don't have the right words..
 Amy Frank September 01, 2004 at 11:35 AM CDT
...because I don't understand. But I do love you and wish I were right there to give you a hug and have a good cry.

You're in my constant prayers; Amy

 Sleepless Nights
 Matt and Tracy Hooten September 01, 2004 at 10:44 AM CDT
I, too, had many sleepless nights after Rachel passed away. In my mind, I kept reliving the events of the last day of her life. It made me so traumatized to recall this over and over every night, and not sleep. I had to make a determined effort to try and remember the good times, and not focus on that day, because that isn't how I wanted to remember her. I decided to look at pictures that would help me think of other, more happy, memories. Matt and I made an effort to talk about more "happy" times every day. Doing this, of course, did not make it all better. But, it has helped me to refocus. Everything we are going through is part of the grieving process, and needs to happen. Try and take your time and not get overwhelmed, so you can take the needed time to grieve. We will never be as happy as when Rachel was with us, and we will always miss her and wish she were here. (And, you w/ Severin.) I read somewhere that losing a child is (somewhat) like losing an arm. You will learn to do things differently, and your life will never be the same. You will always miss that arm and wish you still had it. Sounds trivial, but to me it makes sense to me because Rachel was such a part of me. We continue to keep you in our prayers. We are also looking forward to seeing you in Ann Arbor, and wish it could be under better circumstances. May God be with you, Matt and Tracy Hooten
Thinking of you
 Lauren Daves  September 01, 2004 at 09:17 AM CDT
I am so sorry about the pictures. Someone stole from my daughter, Logan Elise's grave and while that's not the same as losing pictures of precious, timeless memories...I feel that to many people in our world that nothing is sacred. You and I know different.
One of the grief books I am reading discussed that when you lose a child - you now have 2 lives. The one before you lost your child and the one after...The first one with precious memories and feelings of normalcy and the second one in a constant search for some sense of normal that won't ever come and feelings of lost memories...Somehow we have to figure out how to "manage" the pain but it we won't ever be "better" as most people will want - grief isn't an illness.

I will continue to pray for you and your family- if you are interested in any of the books I've read - feel free to e-mail me. I have a bunch that I flip and read through that are helpful in making me feel safe about my wide, unpredictable range of emotions.

mom to Conner and hlhs angel Logan Elise
My heart aches
 Lisa Ziff September 01, 2004 at 09:14 AM CDT
My heart absolutely aches for you. Not a day goes by when I don't think of you and the heartache you are experiencing. I know all to well that I could have and still could be in your position one day. I just can't even imagine what you are going through. I sure hope that each day gets a little easier. I miss you.

Lisa Ziff
 Estelle Palmer  September 01, 2004 at 09:06 AM CDT
After the loss of our son, a friend gave me this poem and even though it has been more than 20 yrs. I still have it on my dresser and repeat it often:

I believe in the sun though it may not be shining
I believe in the wind though my eyes may not see it
I believe in Love though I may be alone
I believe in God though he may not give me any answer

Thinking of you and yours...Estelle
 David McFarland September 01, 2004 at 03:55 AM CDT
We sense your pain and feel your grief; we wish we could carry some of the load for you but we cannot. All we can do is walk quietly with you through these difficult days and show we care. We love you all, we will be here for you; friends forever.

with prayers to the One who cares more than we ever could,



Not a day...
 Mary Ramnarine  September 01, 2004 at 01:13 AM CDT
Not a day goes by that I don't think of Severin and the "what ifs" that you mentioned. Every night we say prayers and it always includes you, Severin, and your family. We pray that you are able to find just a tiny bit of peace through it all.

Whatever you need, just holler.

Love, Dee
Thinking of you

 Michelle Gaudette September 01, 2004 at 12:32 AM CDT
I have been thinking of all of you and keeping you in my prayers. So sad about those pictures, It takes a weak person to inflict such pain on someone else for personal gain.
Memories are so beautiful, even the painful ones. Year after year, you will remember the precious time you had with sweet little Severin, and though the pain will still be there, you will look back and smile at the little heart that had a big effect on so many of us.
I heard Alabama 3 years ago at our local fair, and I remember Angels Among Us. It was always a tearjerker, but now it has such profound meaning. I know you all feel closer to your angels when you hear it.
Take care, and may God continue to offer his healing love
Michelle & Cheyenne, Little hearts
You were on my mind
 Wendy and Dan Romans  August 26, 2004 at 11:38 PM CDT
I think of you often. You are in my prayers always for God to continue to give you the strength you need.

Love, Wendy
Thinking about you
 Lisa Ziff August 26, 2004 at 11:29 AM CDT
Dear Amy & Chad,
Just a little note to let you know that we still continue to think about you guys often and hope that things are getting a little easier. We miss talking to you everyday. Take Care and e-mail or call if you want to chat.

Lisa, Adam & Shay
Daily Thoughts
 Tammy Anderson  August 25, 2004 at 10:53 AM CDT
Dear Brenny Family,

My thoughts often bring me to you. Know that I still pray for you, as well as my whole family. Tammy ( mom to Cedric- HLHS, member of Little Hearts)

Heart Family
 Jennifer Forrest  August 25, 2004 at 01:25 AM CDT
Never forgotten. I think of you all so often and pray each day becomes a little easier for your family. It breaks my heart to hear how hard the children are taking all of this and then it aches to know you guys are the ones who then have to try to ease their pain. I wish I could take just one ounce of your pain to make it easier for you.

I know no one would ever be offended by unanswered messages or calls. We do not understand but yet we do understand. You please just take care of you and know we will be hear in the end, when you are ready.

I hope you tooth is okay. We do not want to have to start calling you the toothless wonder.

Take care my friends,
my prayers continue on.
Jen F.
just wondering
 Misty Hance August 23, 2004 at 07:09 PM CDT
Actually a couple of things, first how are YOU doing Amy? And did you ever get the picture stick back? You are on my mind so much! Love ya, Misty
 Deb Novak August 21, 2004 at 09:30 PM CDT
I was just thinking about you and thought I'd write to say hello.
We remember you
 Rena Walker August 19, 2004 at 10:10 AM CDT
I often think about you guys and I hope the camera memory stick has been returned. God has put many barriers for you to cross and soon things must get better for you. I know you may not get on the carepage often and I definately understand why. I just wanted you to know we still think about you and pray.

Rena Walker
Thoughts are with you
 Mary Tousignant August 15, 2004 at 06:04 PM CDT
Hi Amy and Chad,

You guys have been in my thoughts and prayers daily. Hope you are hanging in there and that we've maybe got a lead on the camera. I haven't called because I know you're exhausted mentally and physically right now. I would love to stop by with dinner for you guys some night soon as well as intoduce you to Tommy. I'll be in touch.



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